Daniel has continued to build up his strength over the past week, he has been left still quite weak from the surgery (as expected) and so is doing exercise little and often. Today we went out on our longest bike ride since the surgery and Daniel seemed to be enjoying the freedom trying to go as fast as he could. We rode for around half an hour and during this time Daniel informed me that since the SDR surgery he could now brake with BOTH hands.He was very pleased with this - so was I!!
Safe journey to Francesca who will be returning from her adventure in St Louis this week - we look forward to meeting up.
Monday, 26 July 2010
Sunday, 25 July 2010
Darts Fundraiser
Thank you very much to Zoe Warner & Drew Salter who recently organised a darts tournament as a fund raiser for Daniel.It was a brilliant effort to raise over £250, and many thanks to everyone who took part.
Saturday, 17 July 2010
Daniel's Progress
Daniel is continuing to strengthen up and his legs are now a bit more comfortable where his hamstrings and heel tendons were cut. Last week he struggled to walk with his frame outside the house for twenty steps, but this week he has reached the end of the street and back which is about 100 metres. It is easy to forget that it is only just over two weeks since the last surgery, and so the recovery is going as well as we can expect.
I asked Daniel how he thought he was getting on and he said, "I'm getting on just fine".
I asked Daniel how he thought he was getting on and he said, "I'm getting on just fine".
Saturday, 10 July 2010
Swans v. Posh Legends Football Match
The Hampton Swans football team have kindly organised a football match against a Posh Legends team to help raise funds for Daniel's treatment.
The match will take place on Sunday 22nd August at 2pm, and will be played at the pitch at Beaumont Way, Hampton Hargate.
Special thanks to both teams for taking time out to help us - we really appreciate your efforts.
The match will take place on Sunday 22nd August at 2pm, and will be played at the pitch at Beaumont Way, Hampton Hargate.
Special thanks to both teams for taking time out to help us - we really appreciate your efforts.
Summer Supper
On Wednesday Daniel's school hosted the Summer Supper and it was great for Daniel to be able to attend a fundraiser after being away. The entertainment was provided by Miss Swingler on guitar and Mrs Yeeles who showed us how well she can sing (very well!)and so big thanks to both ladies. Thank you also to all of the staff and parents who provided the barbecue and refreshments and helped out. Finally thank you to all of the families who turned up for the event which was a sell out.
Monday, 5 July 2010
Home at last!!
It was wonderful to all meet up again at Heathrow Airport on Saturday morning. It seemed such a long time ago when we had gone our separate ways on May 23rd - but was well worth all the hard work so far. Daniel is still recovering from the tendon release and so only walking very short distances at the moment, and getting very tired in the meantime. Hopefully by the end of this week he will be a bit stronger and ready to attend school.
We would like to thank everyone who has supported us over the last two months we really appreciate all the hard work and help. We will continue to update the blog but every few days now. See you all soon X
We would like to thank everyone who has supported us over the last two months we really appreciate all the hard work and help. We will continue to update the blog but every few days now. See you all soon X
Friday, 2 July 2010
Final Night
We saw Dr Park this morning and he was pleased with the range of movement in Daniel's feet and legs following the surgery on Tuesday. He would like to see a video of Daniel's mobility in six months, and said that ideally he would like Daniel to return for follow-up in a year. He advised on how we should help Daniel's progress and one of the main things is, of course, "lots of walking".
Daniel has been off of his feet since the surgery on Tuesday and his tendons and hamstrings are still sore, and so we headed into therapy afterwards a bit apprehensively . Michael the therapist stretched Daniel's legs and within minutes the extension and straightness that could be achieved in both legs was already significantly better than before. It appears that the lengthening procedure has been very successful, and Daniel's flexibility will continue to improve through regular stretching.
Later in the session Daniel did some standing from a seated position while he was supported by Michael, and he also stood up for as long as possible with his hands positioned on a bench in front of him.
On Friday we have therapy again at 8am and we fly out in the sfternoon.
To the casual observer Daniel's mobility now may not look radically different to six weeks ago, but in fact there have been major positive changes from both operations that have got him to a state where he can make really big improvements in mobility as he gains strength. He does not have the involuntary tightness in his legs that he had before, and his feet and legs have a much greater range of movement, which is critical to smoother and more comfortable walking. He is using his leg muscles in a different way now and as they strengthen over a few months it will be extremely interesting to see what Daniel can achieve.
Jobs a good 'un - we're outta here!
Daniel has been off of his feet since the surgery on Tuesday and his tendons and hamstrings are still sore, and so we headed into therapy afterwards a bit apprehensively . Michael the therapist stretched Daniel's legs and within minutes the extension and straightness that could be achieved in both legs was already significantly better than before. It appears that the lengthening procedure has been very successful, and Daniel's flexibility will continue to improve through regular stretching.
Later in the session Daniel did some standing from a seated position while he was supported by Michael, and he also stood up for as long as possible with his hands positioned on a bench in front of him.
On Friday we have therapy again at 8am and we fly out in the sfternoon.
To the casual observer Daniel's mobility now may not look radically different to six weeks ago, but in fact there have been major positive changes from both operations that have got him to a state where he can make really big improvements in mobility as he gains strength. He does not have the involuntary tightness in his legs that he had before, and his feet and legs have a much greater range of movement, which is critical to smoother and more comfortable walking. He is using his leg muscles in a different way now and as they strengthen over a few months it will be extremely interesting to see what Daniel can achieve.
Jobs a good 'un - we're outta here!
Thursday, 1 July 2010
Out of Hospital
Tuesday night was comfortable for Daniel and we were discharged from the hospital late on Wednesday morning. He has 4 bandages on his legs, on the inside of his thighs just above knee height, and on both heel tendons at the base of his calves. He currently is comfortable when sitting but he has not put his weight on his legs yet.
He was able to go to the evening meal in the hotel tonight in his wheelchair and that was good for his morale.
Although Daniel has a lot of work to do for a full recovery it is great to get the final surgery completed without any problems so far. The pain in his legs should ease over a few days and I think he'll forget about it when he sees his mum and brother on Saturday morning.
He was able to go to the evening meal in the hotel tonight in his wheelchair and that was good for his morale.
Although Daniel has a lot of work to do for a full recovery it is great to get the final surgery completed without any problems so far. The pain in his legs should ease over a few days and I think he'll forget about it when he sees his mum and brother on Saturday morning.
Subscribe to:
Posts (Atom)
